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Developing an Infrastructure for Bereavement Outreach in a Maternal-Fetal Care Center

  • Joanna C.M. Cole
  • , Alexandria Budney
  • , Lori J. Howell
  • , Julie S. Moldenhauer
  • The Children's Hospital of Philadelphia

Research output: Contribution to journalArticlepeer-review

7 Scopus citations

Abstract

Although bereavement programs are a common element of palliative medicine and hospice programs, few maternal-fetal care centers offer universal bereavement outreach services following perinatal loss. In this article, we describe the implementation of a bereavement outreach program at the Center for Fetal Diagnosis and Treatment at the Children's Hospital of Philadelphia. The four primary goals identified when developing the bereavement outreach protocol included: (1) centralize communication for patient tracking when a perinatal loss occurs, (2) provide individualized and consistent resource support for grieving patients and families, (3) identify strategic outreach points throughout the first year post-loss, and (4) instate programmatic improvements in response to feedback from patients and their families. Strategies for establishing standardized follow-up protocols and operationalizing methods to address outreach initiatives will be shared, with the primary aim of providing other fetal care centers with a proposed model for perinatal bereavement outreach services.

Original languageEnglish
Pages (from-to)960-965
Number of pages6
JournalFetal Diagnosis and Therapy
Volume47
Issue number12
DOIs
StatePublished - Dec 2020
Externally publishedYes

Keywords

  • Bereavement outreach
  • Birth defects
  • Congenital anomalies
  • Fetal care
  • Grief support
  • Maternal care
  • Parental grief
  • Perinatal loss

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