Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

Alexander R. Opotowsky; Kiona Y. Allen; Emily M. Bucholz; Kristin M. Burns; Pedro del Nido; Kathleen N. Fenton; Bruce D. Gelb; James N. Kirkpatrick; Shelby Kutty; Linda M. Lambert; Keila N. Lopez; Laura J. Olivieri; Nathan M. Pajor; Sara K. Pasquali; Christopher J. Petit; Erica Sood; John M. VanBuren; Gail D. Pearson; Shelley D. Miyamoto

doi:10.1016/j.jacc.2022.09.032

Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

Alexander R. Opotowsky
, Kiona Y. Allen
, Emily M. Bucholz
, Kristin M. Burns
, Pedro del Nido
, Kathleen N. Fenton
, Bruce D. Gelb
, James N. Kirkpatrick
, Shelby Kutty
, Linda M. Lambert
, Keila N. Lopez
, Laura J. Olivieri
, Nathan M. Pajor
, Sara K. Pasquali
, Christopher J. Petit
, Erica Sood
, John M. VanBuren
, Gail D. Pearson
, Shelley D. Miyamoto

University of Cincinnati
Northwestern University
Boston Children's Hospital
National Institutes of Health
Icahn School of Medicine at Mount Sinai
University of Washington
Johns Hopkins University
University of Utah
Baylor College of Medicine
University of Pittsburgh
University of Michigan, Ann Arbor
Columbia University
University of Colorado School of Medicine

Research output: Contribution to journal › Review article › peer-review

22 Scopus citations

Abstract

The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.

Original language	English
Pages (from-to)	2239-2250
Number of pages	12
Journal	Journal of the American College of Cardiology
Volume	80
Issue number	23
DOIs	https://doi.org/10.1016/j.jacc.2022.09.032
State	Published - 6 Dec 2022

Keywords

collaborative science
congenital heart disease
lifespan
outcomes
research

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10.1016/j.jacc.2022.09.032

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Opotowsky, A. R., Allen, K. Y., Bucholz, E. M., Burns, K. M., del Nido, P., Fenton, K. N., Gelb, B. D., Kirkpatrick, J. N., Kutty, S., Lambert, L. M., Lopez, K. N., Olivieri, L. J., Pajor, N. M., Pasquali, S. K., Petit, C. J., Sood, E., VanBuren, J. M., Pearson, G. D., & Miyamoto, S. D. (2022). Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week. Journal of the American College of Cardiology, 80(23), 2239-2250. https://doi.org/10.1016/j.jacc.2022.09.032

@article{383c2e6d9a4a40c6aebb03cbe3864efb,

title = "Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week",

abstract = "The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.",

keywords = "collaborative science, congenital heart disease, lifespan, outcomes, research",

author = "Opotowsky, \{Alexander R.\} and Allen, \{Kiona Y.\} and Bucholz, \{Emily M.\} and Burns, \{Kristin M.\} and \{del Nido\}, Pedro and Fenton, \{Kathleen N.\} and Gelb, \{Bruce D.\} and Kirkpatrick, \{James N.\} and Shelby Kutty and Lambert, \{Linda M.\} and Lopez, \{Keila N.\} and Olivieri, \{Laura J.\} and Pajor, \{Nathan M.\} and Pasquali, \{Sara K.\} and Petit, \{Christopher J.\} and Erica Sood and VanBuren, \{John M.\} and Pearson, \{Gail D.\} and Miyamoto, \{Shelley D.\}",

note = "Publisher Copyright: {\textcopyright} 2022 American College of Cardiology Foundation",

year = "2022",

month = dec,

day = "6",

doi = "10.1016/j.jacc.2022.09.032",

language = "English",

volume = "80",

pages = "2239--2250",

journal = "Journal of the American College of Cardiology",

issn = "0735-1097",

publisher = "Elsevier Inc.",

number = "23",

}

Opotowsky, AR, Allen, KY, Bucholz, EM, Burns, KM, del Nido, P, Fenton, KN, Gelb, BD, Kirkpatrick, JN, Kutty, S, Lambert, LM, Lopez, KN, Olivieri, LJ, Pajor, NM, Pasquali, SK, Petit, CJ, Sood, E, VanBuren, JM, Pearson, GD & Miyamoto, SD 2022, 'Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week', Journal of the American College of Cardiology, vol. 80, no. 23, pp. 2239-2250. https://doi.org/10.1016/j.jacc.2022.09.032

TY - JOUR

T1 - Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities

T2 - JACC Review Topic of the Week

AU - Opotowsky, Alexander R.

AU - Allen, Kiona Y.

AU - Bucholz, Emily M.

AU - Burns, Kristin M.

AU - del Nido, Pedro

AU - Fenton, Kathleen N.

AU - Gelb, Bruce D.

AU - Kirkpatrick, James N.

AU - Kutty, Shelby

AU - Lambert, Linda M.

AU - Lopez, Keila N.

AU - Olivieri, Laura J.

AU - Pajor, Nathan M.

AU - Pasquali, Sara K.

AU - Petit, Christopher J.

AU - Sood, Erica

AU - VanBuren, John M.

AU - Pearson, Gail D.

AU - Miyamoto, Shelley D.

PY - 2022/12/6

Y1 - 2022/12/6

N2 - The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.

AB - The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.

KW - collaborative science

KW - congenital heart disease

KW - lifespan

KW - outcomes

KW - research

UR - https://www.scopus.com/pages/publications/85142001571

U2 - 10.1016/j.jacc.2022.09.032

DO - 10.1016/j.jacc.2022.09.032

M3 - Review article

C2 - 36456054

AN - SCOPUS:85142001571

SN - 0735-1097

VL - 80

SP - 2239

EP - 2250

JO - Journal of the American College of Cardiology

JF - Journal of the American College of Cardiology

IS - 23

ER -

Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

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Keywords

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